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Get behind the Australian Mitochondrial Disease Foundation's awareness week

REST UP: Global Mitochondrial Disease Awareness Week finishes this Sunday with National Stay in Bed Day on Sunday, September 25.
REST UP: Global Mitochondrial Disease Awareness Week finishes this Sunday with National Stay in Bed Day on Sunday, September 25.

HAVE you ever heard of Mitochondrial Disease?

Most people haven't, and that's exactly why the Australian Mitochondrial Disease Foundation (AMDF) wants you to Stay in Bed or Light Up for Mito during Global Mitochondrial Disease Awareness Week, 18-25 September 2016.

At least 30 Australian children (1 in 200) born every week are at risk of developing some form of the debilitating and potentially fatal disorder.

It is the second most commonly diagnosed serious genetic disease behind cystic fibrosis.

AMDF CEO Sean Murray said mitochondrial disease was a complex disorder that robs the body's cells of energy, starving muscles and major organs of the power they need to function properly.

AMDF CEO Sean Murray
AMDF CEO Sean Murray

"There are few treatments and no cure for mito, which can cause any symptom in any organ at any age. However, 90% of affected people are misdiagnosed, undiagnosed or may unknowingly pass mitochondrial disease on to their unborn children,” he said.

"We encourage everyone to stay in bed, 'light up for mito', share information on social media and make a donation during Global Mitochondrial Disease Awareness Week to help the AMDF raise awareness and much-needed funds for vital research into a cure.”

Australians can lie-in guilt-free on Sunday 25 September by donating at stayinbedday.org.au or organising or supporting pyjama parties at their workplace or school on the day or during spring.



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