Abraham and mum spread the word

By TAMARA KEMP tamara.kemp@capnews.com.au ? WITH HIS contagious smile and infectious laugh you would think that Abraham O'Rourke was a normal 10-year-old boy.

But at the mere age of 13 months, something changed Abraham's life: he started having seizures. For three years his mother Anne, confused and upset about Abraham's condition, frantically tried to find out what her son was experiencing.

Sleepless nights and seizure after seizure, it was not until Abraham was almost four years old before he was diagnosed with Lennox Gastaut Syndrome, a severe form of epilepsy.

Ms O'Rourke said Abraham could experience up to six different seizures that were generally difficult to control due to their resistance to anti-epileptic drugs.

But with the help of her loving family and carers, Anne has tried with all her might to show him the meaningful life he deserves.

"A simple task of getting the kids to school takes all of two hours with Abraham,'' she said.

"We take him to the beach every now and then, but it's a strict routine everyone has to stick to.''

Ms O'Rourke said she wanted to bring epilepsy out of the shadows as part of Epilepsy Queensland's Little Poss Appeal from June 27 to July 10.

As a member of the club, Ms O'Rourke and Abraham hope to raise much needed funds and help education about the disorder.

Key torches and a range of merchandise including pens, bookmarks and post-it notes are available from Westpac branches, news agencies, pharmacies and volunteers in local shopping centres.

"This is a way people can help bring epilepsy out of the shadows,'' she said.



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