Shining a light on Parkinson’s through support group
"I DO not know what I have done, to deserve the thing I've got; this rotten thing called Parkinson's has now become my lot."
That's the opening line of one of Hugh Evans' poems about the slowly debilitating disease known as Parkinson's, which his wife Eunice has suffered from for more than 25 years.
Hugh is the co-ordinator of the Parkinson's Support Group, which meets at Yeppoon Hospital every two months.
Hugh said the group's meetings were more like a family get-together.
"We want people with Parkinson's to know they're not alone, that they can talk about it," the 85-year-old said.
"We don't want people to feel shy or ashamed of it.
"It's a great time for everyone who comes along to share their stories and experiences, and just to talk about anything at all."
Parkinson's is a progressive neurological condition that affects people from all walks of life.
It's quite common, with about 80,000 Australians living with Parkinson's.
Marrying later in life, Hugh said it was difficult at times to watch someone you love unable to do the things they used to do.
"But we're lucky that I'm as healthy as I am and can be her carer, because some people have no one and end up in a home - and that's when your health declines very quickly," he said.
All members and carers are invited to the Parkinson's Support Group meetings. Phone Hugh on 4939 4686.