BRAVE BOY: Hudson Chirio has epilepsy and will undergo a left hemispherectomy to stop his seizures.
BRAVE BOY: Hudson Chirio has epilepsy and will undergo a left hemispherectomy to stop his seizures. Contributed

Surgery the last hope for toddler twin with seizures

TONI and Janelle Chirio were ready for children, but nothing could have prepared them for the sickness and hospital visits that would follow.

On April 1, 2013, twins Hudson and Mason were born in Brisbane.

But at 11-weeks-old little Hudson had his first seizure.

The Moura-based family travelled back to Brisbane, where an MRI revealed he had suffered a major stroke to the left side of his brain while he was still in the womb.

For the last two years, the seizures have continued. At one point he was having seizures every five minutes.

Now, he has one about every 20 minutes.

Hudson's twin brother Mason is a playful two-year-old who has an uncanny knowledge of his brother's conditions.

"What Hudson lacks, Mason makes up for.

"If Hudson drops a toy on his right side and can't pick it up, Mason will walk around and grab it and give it to his left side where he can see it better.

"They have a very special bond, that unusual identical twin bond."

Every 12 weeks for the past two years, the family has travelled to Brisbane for check ups, and every six weeks they go to Rockhampton.

"(Doctors have) exhausted all options. They've put Hudson on every medicine known to man for epilepsy and on a ketogenic diet and they are not working either."

They are currently in Brisbane doing pre-tests for a left hemispherectomy, a brain surgery that will stop his epilepsy. Janelle said it was their final hope.

Hudson also has cerebral palsy, impaired vision and hearing, intellectual difficulties and lost 70% of his left side of his brain in the perinatal stroke.

"You just want to pretend it's never happened and that he's fine," she said.

"They told us we just have to keep doing as much physio and speech therapy and occupational therapy to give him some kind of chance … the best chance at life," she said.

The family has spent $10,000 on a walker and wheelchair recommended by doctors.

Several fundraisers are being held, including three hosted by Gladstone woman Roxy Ramm.

"She's told me that she's going to try to raise as much money as she can. To hear that, is amazing."

FUNDRAISERS:

Charity Golf Day

4 ball ambrose 18 hole game on March 28 from 8.30am at the Moura Golf Club, $40 per team.

There will be loads of prizes, a drinks cart, barbecue lunch, kids corner and a jumping castle.

Phone Janelle to register on 0400 580 509.

Gladstone Old School Cars Easter Show

Gladstone Valley Car park bottom end of Goondoon St at 5pm.

There will be a special visit from Mr and Mrs Easter Bunny.

Heaps of hampers and trophies to be won, so if you have an old school car bring it to the car park.

Old School Cars display

On Easter Saturday, April 4 there will be an old car show display and sausage sizzle at the Nissan caryard from 9am - 2pm.

On April 11 Repco show and shine Gladstone Old School Cars will be on display with raffle tickets, a sausage sizzle and heaps of fun for the kids from 10am - 2pm.

All money raised from these fundraisers will go towards Hudson's ongoing medical bills.

Donations can also be made at ANZ Bank

Account name: T&J CHIRIO ATT HUDSON CHIRIO

BSB: 014 667, ACC: 218578032



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