Liz and Anthony Sinclair with their sons (Back) Kyan (7) and (sitting in lap) Cooper (5). Liz is organising a 12 hour relay swim to raise money for Cooper who suffers a severe form of epilepsy called Dravet Syndrome. Photo: Chris Ison / The Morning Bulletin
Liz and Anthony Sinclair with their sons (Back) Kyan (7) and (sitting in lap) Cooper (5). Liz is organising a 12 hour relay swim to raise money for Cooper who suffers a severe form of epilepsy called Dravet Syndrome. Photo: Chris Ison / The Morning Bulletin Chris Ison

12-hour swim relay to raise money for Cooper's cause

THE trampoline is a big no-no for young Cooper Sinclair because if he gets too excited he will suddenly have a seizure.

His parents Liz and Anthony Sinclair will also tell you they won't forget the time their five-year-old treasure had 26 seizures in 32 hours.

Mr and Mrs Sinclair knew their lives wouldn't be an ordinary one when they first found out their boy had a very severe and uncontrollable form of epilepsy.

Young Cooper would have been about seven months when he had his first seizure.

Before their eyes, Liz and Anthony's baby had turned blue and Cooper was having a seizure in his cot.

They called 000 and in the mean time held him in front of the air-conditioner, not knowing what was happening.

Cooper's breathing was restricted and he was drooling everywhere. Mum Liz said it looked like he had the hiccups.

He was diagnosed with Dravet Syndrome.

Nine days after he had his first seizure, the next one came. In the subsequent years the seizures became more frequent.

There is no known cure for Cooper's condition, which is brought on by the simplest of things like too much excitement.

"He can't even go to the beach ... he can't sweat because of his condition and we have to regulate his body temperature," Anthony said. "He needs 24-hour care." There are only about 150 cases in Australia and New Zealand.

In a bid to raise awareness of Cooper's condition Liz and Anthony are organising a 12-hour relay swim for life at the Yeppoon Aquatic Centre on Sunday January 14.

For more information see the Cooper Sinclair Dravet Syndrome Foundation Facebook page.



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